Kate WalkerFeb 274 minMy Rare Disease Diagnosis StoryMy rare disease diagnosis story is long and complicated, and it's one I have shared before. But to acknowledge rare disease day, I...
Kate WalkerJan 163 min6 month SKYCLARYS updateIn February of 2023, the FDA approved the first ever treatment for Friedreich's ataxia, SKYCLARYS. This approval was a long time coming,...