I just graduated high school and will be starting my freshman year of college in the fall. I am going to college almost six hours away...

I think that we have all had days where we feel like our mind is in a billion places and there is no way that we can possibly keep up...

I often run out of ideas and am stuck in a creative block for weeks at a time. The pandemic and spending a lot of time at home only makes...

If you haven't heard of the Enneagram personalities, I highly recommend you look it up and take the test https://www.truity.com/test/enne...

Having a rare disease and a heart condition puts me in the high risk zone for having complications if I got the coronavirus. Because of...

Hi everyone! Make it Happen CureFA is now a 501(c)(3), non-profit! We have been working on this for so long and would love for you to...

This week’s post is all about getting healthy. Dun dun dunnnnnnn. Eating healthy and working out is honestly so difficult for me. If you...

You know that Hannah Montana song "Ordinary Girl"? If not, you didn't have a childhood and you should listen to it (I put a link to it...

I know that I have built an optimistic platform and that I want to keep smiling through disability. However, I also want to let everyone...

When I look at Kate, I see my best friend. Plain and simple. I sometimes forget that she even has a disability. I see someone that will...

FAtigue is one of the major symptoms of Friedreich's Ataxia. Traveling, school, or even spending a day out and about wears me down. When...

One of the hardest things to deal with as far as FA goes is progression. Knowing that you are not going to get better is bad enough, much...

On January 19th 2016, I was diagnosed with Friedreich’s Ataxia. I will never forget that day. I sat by my mom in the car in the parking...

Hi there! I’m Kelly, a 25-year-old living life with FA in Cleveland, Ohio. I was diagnosed at 18, and even though it is a huge factor in...

The need to be connected, or the need to love and be loved, are among the most basic needs that exists for people. As children, we grow...

Hi, my name is Shandra Trantham and I am 20 years old. I’m a student at the University of South Florida studying Cell and Molecular...

$42,000. That is how much you raised to support FA research and my family this year. $42,000. When I was first diagnosed, if you had told...

One thing I have realized on my journey with FA is that I need my friends. I have to find the friends that will help and support me...

Hi! My name is Kate and I am 14 years old! I have a neuromuscular condition called Friedreich's Ataxia. Over the past year and a half of...